Læknablaðið : fylgirit - 01.05.2002, Qupperneq 20

Læknablaðið : fylgirit - 01.05.2002, Qupperneq 20
ABSTRACTS / 33RD SNC & 2ND SCNN L05 - Cortical pathology in multiple sclerosis Ba L Department of Neurology, Haukeland Hospital, Bergen, Norway Previous studies indicate that cortical plaques may constitute a significant proportion of multiple sclerosis (MS) lesions in the brain. In a systematic immunohistochemical autopsy study of 4 different brain regions in MS we found that the percentage demye- linated area was significantly higher in the cerebral cortex than in subcortical white matter. Five of 20 MS brains contained extensive subpial demyelination in all areas studied, indicating a general subpial demyelination. Purely cortical lesions accounted for 85,6% of the total demyelinated area in cerebral cortex. We have found that the number of T cells detected in intracortical demyelinated lesions is low, and equal to in nondemyelinated cerebral cortex in MS patients and in controls. In a recent study transected neurites were detected in cortical lesions, although at lower density than in white matter lesions in the same MS patients. Apoptotic neurons were significantly increased in demyelinated cortex compared to in myelinated cortex. The data of these and previous studies indicate that the cerebral cortex is a predilection site for MS lesions, and that the pathogenesis of demyelination within different regions of the brain may be heterogeneous. Cortical lesions may contribute to the sensory and motor deficits of MS, as well as to cognitive impairment and epilepsy. L06 - Scandinavian Co-Operation between Neurologic Nurses Jámsá T Nursing Officer, Oulu University Hospital, Finland I am very happy that Iceland and Ingibjörk Kolbeins with her co- workers have arranged this Second Scandinavian Congress of Neurological Nursing. I will first tell you briefly about the organization of public health care in Finland and then describe the questionnaire survey I carried out among the nursing officers and ward nurses in the clinics of neurology of Finnish university hospitals. The topic of the questionnaire was Scandinavian co-operation. Finally, I will suggest some ways in which we could promote Scandinavian co-operation in the future. In Finland, public health has been organized at three levels - primary health care (health centres operated by municipalities or intermunicipal boards), regional and central hospitals and univer- sity hospitals. Only university hospitals have separate outpatienl clinics and one or two inpatient wards for neurologic patients. The nurses working in central hospitals and health centres have to concentrate on many patient groups apart from neurologic patients. Being a nursing officer in a university hospital, I also feel concern for the ability of nur'ses in primary health care to take care of neurologic patients. I hope that all nurses providing care to neurologic patients would be able, if they so wish, to participate in Scandinavian co-operation. I presented a questionnaire to the nursing officers and head nurses (N=23) working in clinics of neurology in the Finnish university hospitals (5) concerning Scandinavian co-operation in February 2002. The respondents had a long experience as nursing officers. All of them considered Scandinavian co-operation either extremely important or important. Despite this, few are engaged in such co-operation at the present. FIow would Scandinavian co-operation between neurologic nurses affect the quality of life of neurologic patients? Culture and living conditions are notably similar in the Scandinavian countries. The countries also share the public demand for cost efficiency and efficacy of health care. Exchange of knowledge concerning new and different nursing practices in Scandinavian educational pro- grammes would improve the quality or neurologic nursing. Scandinavian research projects in nursing science would be both extensive and interesting. The results of research and development projects could be presented in Scandinavian educational pro- grammes. We could even outline disease-specific nursing recom- mendations for Scandinavian nurses to facilitate their work. Neurologic patient organizations are engaged in Scandinavian co-operation. The Parkinson Association, for example, arranges Scandinavian meetings and facilitates exchange of patient educa- tion materials. What does Scandinavian co-operation mean for neurologic nurses? The following things were considered important: profes- sional growth, exchange of information, increasing internationali- zation and improvement of language skills. The high cost of travel- ling to international congresses was considered a problem. The nurse associations specializing in certain neurologic diseases co- operate at the international level. The First Scandinavian Congress of Neurological Nursing was arranged in Oulu, Finland, in June 1998. We had lecturers from Norway, Sweden and Finland in that congress. My aim was to recruit lecturers from each Scandinavian country. Altogether 122 nurses participated. The participants came from Sweden (12), Norway (15), Denmark (8) and Finland (87). They expressed their hope to have such congresses arranged at regular intervals. It is obvious that we need Scandinavian co-operation. It should be systematic and organized rather than merely co-operation moti- vated by interpersonal contacts. I sincerely hope that Scandinavian Congresses of Neurological Nursing would continue to be arranged regularly and, whenever possible, concurrently with congresses of neurologists. This would help to enhance co-operation between nurses and medical specialists. The organization of a congress requires a lot of work. To facilitate this work, I suggest that a Scandinavian co-operative committee should be set up, which could decide about the topics of the each congress, help to invite the lecturers and co-ordinate the presentation of research papers. The organizing committee could also help to co-ordinate Scandinavian research in nursing science. L07 - Quality of life in Parkinson’s disease Hagell P Section of Restorative Neurology, Dept. of Clinical Neuroscience, University Hospital, Lund, Sweden Quality of life (QoL) has a long history; it has been debated for centuries and under scientific scrutiny for decades. In terms of the impact of ill health on people’s QoL, measurement attempts have typically been made using the health-related QoL (FIRQoL) approach. The term FIRQoL has largely come to substitute what earlier was described as health status, and the two are typically 20 Læknablaðið/Fylgirit 43 2002/88

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