Tímarit hjúkrunarfræðinga - 2017, Blaðsíða 30

ungis vegna glímunnar við að meðhöndla LLT
heldur einnig vegna þarfar fjölskyldunnar á sér-
hæfðri aðstoð við að takast á við áhrif og af-
leiðingar LLT.
Heilbrigðisþjónusta fyrir fólk með langvinna
lungnateppu þarf að vera þverfagleg og ná til
þeirra þjónustueininga og stofnana sem við eiga
hverju sinni. Slík þjónusta er líklegri til að ná utan
um margþætt og síbreytileg vandamál og ekki síst
að taka til alls þess sem til staðar þarf að vera til
að einstaklingar og fjölskyldur geti lifað farsællega
með sjúkdómnum. Augu manna beinast æ meir að
því að nauðsynlegt sé að veita fólki með LLT heild -
ræna og samfellda heilbrigðisþjónustu (Jonkman
o.fl., 2016; Pinnock o.fl., 2016). Því fögnum við
og væntum þess að fá tækifæri til þess að taka þátt
í að þróa og skipuleggja slíka þjónustu á Íslandi í
náinni framtíð.
Lykilorð: Heilsutengd lífsgæði, hjúkrunarmeðferð,
langvinn lungnateppa, samráð, sjálfsumönnun,
reykleysismeðferð, tilraunameðferð
Heimildaskrá
Ansari, S., Hosseinzadeh, H., Dennis, S., og Zwar, N. (2014).
Patients’ perspectives on the impact of a new COPD di-
agnosis in the face of multimorbidity: A qualitative study.
Primary Care Respiratory Medicine, 23 (14036), 16,
http://dx.doi.org/10.1038/npjpcrm.2014.36.
Apps, L.D., Harrison, S.L., Williams, J.E.A., Hudson, N.,
Steiner, M., Morgan, M.D., og Singh, S.J. (2014). How
do informal self-care strategies evolve among patients
with chronic obstructive pulmonary disease managed in
primary care? A qualitative study. International Journal
of COPD, 9, 257–263, doi: http://dx.doi.org/10.2147/
COPD.S52691.
Arne, M., Emtner, M., Janson, S., og Wilde-Larsson, B.
(2007). COPD patients’ perspectives at the time of diag-
nosis: A qualitative study. Primary Care Respiratory
Jour nal, 16 (4), 215-221, doi: http://dx.doi.org/10.3132/
pcrj.2007.00033.
Atlantis E., Fahey, P., Cochrane, B., og Smith, S. (2013). Bidi-
rectional associations between clinically relevant depres-
sion or anxiety and COPD: A systematic review and
meta-analysis. Chest, 144 (3), 766–777, doi:10.1378/
chest.12-1911.
Baker, E., og Fatoye, F. (2017). Clinical and cost effectiveness
of nurse-led self-management interventions for patients
with copd in primary care: A systematic review. Interna-
tional Journal of Nursing Studies, 71, 125–138.
Blackmore, C., Johnson-Warrington, V.L., Williams, J.E.A.,
Apps, L.D., Young, H.M.L., Bourne, C.L.A., og Singh,
S.J. (2017). Development of a training program to sup-
port health care professionals to deliver the SPACE for
COPD self-management. International Journal of COPD,
12, 1669-1681, http://doi.org/10.2147/COPD.S127504.
Blakemore, A., Dickens, C., Guthriem E., Bower, P., Kon-
topantelis, E., Afzal, C., og Coventry, P.A. (2014). De-
pression and anxiety predict health-related quality of life
in chronic obstructive pulmonary disease: Systematic re-
view and meta-analysis. International Journal of Chronic
Obstructive Pulmonary Disease, 9, 501–512, doi: http://
dx.doi.org/10.2147/COPD.S58136.
Bourbeau, J., Julien, M., Maltais, F., Rouleau, M., Beaupré,
A., Begin, R., Renzi, P., Nault, D., Borycki, E., Schwartz-
man, K., Singh, R. og Collet, J.-P. (2003). Reduction of
hospital utilization in patients with chronic obstructive
pulmonary disease. A disease-specific self-management
intervention. Archives of Internal Medicine, 163, 585–
591.
Bragadottir, G.H., Ingadottir, T.S. Halldórsdóttir, B.S., og
Jonsdottir, H. (2017). Patients and families realizing their
future with chronic obstructive pulmonary disease: A
qualitative study. Netbirting í Journal of Clinical Nursing,
doi: 10.1111/jocn.13843.
Bryndís Benediktsdóttir, Gunnar Guðmundsson, Kristín Bára
Jörundsdóttir, W. Vollmer og Þórarinn Gíslason (2007).
Hversu algeng er langvinn lungnateppa? – Íslensk faralds-
fræðileg rannsókn. Læknablaðið, 93, 471–477.
Devins, G.M. (2010). Using the Illness Intrusiveness Ratings
Scale to understand health-related quality of life in
chronic illness. Journal of Psychosomatic Research, 68,
591–602, doi: 10.1016/j.jpsychores.2009.05.006.
Duprez, V., Vandecasteele, T., Verhaeghe, S., Beeckman, D.,
og Van Hecke, A. (2017). The effectiveness of interven-
tion to enhance self-management support competencies
in the nursing profession: A systematic review. Journal of
Advanced Nursing, 73 (8), 1807–1824, doi: 10.1111/jan.
13249.
Ellison, L., Gask, L., Bakerly, N.D., og Roberts, J. (2012).
Meeting the mental health needs of people with chronic
obstructive pulmonary disease: A qualitative study.
Chronic Illness, 8 (4), 308–320, doi: 10.1177/174239
5312449754.
GOLD (2017). From the Global Strategy for the Diagnosis,
Management and Prevention of COPD, Global Initiative
for Chronic Obstructive Lung Disease (GOLD) 2017.
Sótt 16. ágúst 2017 á http://www.goldcopd.org/.
Gullick, J.G., og Stainton, M.C. (2006). Smoking in chronic
obstructive pulmonary disease: A need of the taken-for-
granted body. Journal of Smoking Cessation, 1 (1), 7–12,
doi: http://dx.doi.org/10.1375/jsc.1.1.7.
Halding, A.-G., Heggdal, K., og Wahl, A. (2011). Experiences
of self-blame and stigmatization for self-infliction among
individuals living with COPD. Scandinavian Journal of
Caring Sciences 25, 100–107, doi:10.1111/j.1471–6712.
2010.00796.x.
Hartmann, M., Bzner, E., Wild, B., Eisler, I., og Herzog, W.
(2010). Effects of interventions involving the family in the
treatment of adult patients with chronic physical diseases:
A meta-analysis. Psychotherapy and Psychosomatics, 79,
136–148, doi: 10.1159/000286958.
Ingadottir, T.S., og Jonsdottir, H. (2010). Partnership-based
30 Tímarit hjúkrunarfræðinga
Hjúkrun 2017: Fram í sviðsljósið