Tímarit hjúkrunarfræðinga - 2017, Page 30

Tímarit hjúkrunarfræðinga - 2017, Page 30
ungis vegna glímunnar við að meðhöndla LLT heldur einnig vegna þarfar fjölskyldunnar á sér- hæfðri aðstoð við að takast á við áhrif og af- leiðingar LLT. Heilbrigðisþjónusta fyrir fólk með langvinna lungnateppu þarf að vera þverfagleg og ná til þeirra þjónustueininga og stofnana sem við eiga hverju sinni. Slík þjónusta er líklegri til að ná utan um margþætt og síbreytileg vandamál og ekki síst að taka til alls þess sem til staðar þarf að vera til að einstaklingar og fjölskyldur geti lifað farsællega með sjúkdómnum. Augu manna beinast æ meir að því að nauðsynlegt sé að veita fólki með LLT heild - ræna og samfellda heilbrigðisþjónustu (Jonkman o.fl., 2016; Pinnock o.fl., 2016). Því fögnum við og væntum þess að fá tækifæri til þess að taka þátt í að þróa og skipuleggja slíka þjónustu á Íslandi í náinni framtíð. Lykilorð: Heilsutengd lífsgæði, hjúkrunarmeðferð, langvinn lungnateppa, samráð, sjálfsumönnun, reykleysismeðferð, tilraunameðferð Heimildaskrá Ansari, S., Hosseinzadeh, H., Dennis, S., og Zwar, N. (2014). Patients’ perspectives on the impact of a new COPD di- agnosis in the face of multimorbidity: A qualitative study. Primary Care Respiratory Medicine, 23 (14036), 16, http://dx.doi.org/10.1038/npjpcrm.2014.36. Apps, L.D., Harrison, S.L., Williams, J.E.A., Hudson, N., Steiner, M., Morgan, M.D., og Singh, S.J. (2014). How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study. International Journal of COPD, 9, 257–263, doi: http://dx.doi.org/10.2147/ COPD.S52691. Arne, M., Emtner, M., Janson, S., og Wilde-Larsson, B. (2007). COPD patients’ perspectives at the time of diag- nosis: A qualitative study. Primary Care Respiratory Jour nal, 16 (4), 215-221, doi: http://dx.doi.org/10.3132/ pcrj.2007.00033. Atlantis E., Fahey, P., Cochrane, B., og Smith, S. (2013). Bidi- rectional associations between clinically relevant depres- sion or anxiety and COPD: A systematic review and meta-analysis. Chest, 144 (3), 766–777, doi:10.1378/ chest.12-1911. Baker, E., og Fatoye, F. (2017). Clinical and cost effectiveness of nurse-led self-management interventions for patients with copd in primary care: A systematic review. Interna- tional Journal of Nursing Studies, 71, 125–138. Blackmore, C., Johnson-Warrington, V.L., Williams, J.E.A., Apps, L.D., Young, H.M.L., Bourne, C.L.A., og Singh, S.J. (2017). Development of a training program to sup- port health care professionals to deliver the SPACE for COPD self-management. International Journal of COPD, 12, 1669-1681, http://doi.org/10.2147/COPD.S127504. Blakemore, A., Dickens, C., Guthriem E., Bower, P., Kon- topantelis, E., Afzal, C., og Coventry, P.A. (2014). De- pression and anxiety predict health-related quality of life in chronic obstructive pulmonary disease: Systematic re- view and meta-analysis. International Journal of Chronic Obstructive Pulmonary Disease, 9, 501–512, doi: http:// dx.doi.org/10.2147/COPD.S58136. Bourbeau, J., Julien, M., Maltais, F., Rouleau, M., Beaupré, A., Begin, R., Renzi, P., Nault, D., Borycki, E., Schwartz- man, K., Singh, R. og Collet, J.-P. (2003). Reduction of hospital utilization in patients with chronic obstructive pulmonary disease. A disease-specific self-management intervention. Archives of Internal Medicine, 163, 585– 591. Bragadottir, G.H., Ingadottir, T.S. Halldórsdóttir, B.S., og Jonsdottir, H. (2017). Patients and families realizing their future with chronic obstructive pulmonary disease: A qualitative study. Netbirting í Journal of Clinical Nursing, doi: 10.1111/jocn.13843. Bryndís Benediktsdóttir, Gunnar Guðmundsson, Kristín Bára Jörundsdóttir, W. Vollmer og Þórarinn Gíslason (2007). Hversu algeng er langvinn lungnateppa? – Íslensk faralds- fræðileg rannsókn. Læknablaðið, 93, 471–477. Devins, G.M. (2010). Using the Illness Intrusiveness Ratings Scale to understand health-related quality of life in chronic illness. Journal of Psychosomatic Research, 68, 591–602, doi: 10.1016/j.jpsychores.2009.05.006. Duprez, V., Vandecasteele, T., Verhaeghe, S., Beeckman, D., og Van Hecke, A. (2017). The effectiveness of interven- tion to enhance self-management support competencies in the nursing profession: A systematic review. Journal of Advanced Nursing, 73 (8), 1807–1824, doi: 10.1111/jan. 13249. Ellison, L., Gask, L., Bakerly, N.D., og Roberts, J. (2012). Meeting the mental health needs of people with chronic obstructive pulmonary disease: A qualitative study. Chronic Illness, 8 (4), 308–320, doi: 10.1177/174239 5312449754. GOLD (2017). From the Global Strategy for the Diagnosis, Management and Prevention of COPD, Global Initiative for Chronic Obstructive Lung Disease (GOLD) 2017. Sótt 16. ágúst 2017 á http://www.goldcopd.org/. Gullick, J.G., og Stainton, M.C. (2006). Smoking in chronic obstructive pulmonary disease: A need of the taken-for- granted body. Journal of Smoking Cessation, 1 (1), 7–12, doi: http://dx.doi.org/10.1375/jsc.1.1.7. Halding, A.-G., Heggdal, K., og Wahl, A. (2011). Experiences of self-blame and stigmatization for self-infliction among individuals living with COPD. Scandinavian Journal of Caring Sciences 25, 100–107, doi:10.1111/j.1471–6712. 2010.00796.x. Hartmann, M., Bzner, E., Wild, B., Eisler, I., og Herzog, W. (2010). Effects of interventions involving the family in the treatment of adult patients with chronic physical diseases: A meta-analysis. Psychotherapy and Psychosomatics, 79, 136–148, doi: 10.1159/000286958. Ingadottir, T.S., og Jonsdottir, H. (2010). 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