Tímarit hjúkrunarfræðinga - 01.11.2009, Blaðsíða 60

Tímarit hjúkrunarfræðinga - 01.11.2009, Blaðsíða 60
Tímarit hjúkrunarfræ›inga – 5. tbl. 85. árg. 200956 Þakkir Rannsóknin var styrkt af vísindasjóði Landspítala­ háskólasjúkrahúss og B­hluta vísindasjóðs Félags íslenskra hjúkrunarfræðinga. Heimildir Baum, L.S. (2004). Internet parent support groups for primary caregivers of a child with special health care needs. Pediatric Nursing, 30 (5), 381­8, 401. Borkman, T. (1976). Experiential knowledge: A new conception for the anal­ ysis of self­help groups. Health and Social Work, 10, 95­103. Borkman, T.J. (1999). Understanding self­help/mutual aid. Experiential learn­ ing in the commons. New Brunswick: Rutgers University Press. Bragadottir, H. (2008). Computer­mediated support group intervention for parents. Journal of Nursing Scholarship, 40 (1), 32­38. doi:10.1111/ j.1547­5069.2007.00203.x. Caplan, G. (1979). Patient, provider, and organization: Hypothesized deter­ minants of adherence. Í S.J. Cohen (ritstj.), New directions in patient compliance (bls. 75­110). Lexington, Massachusetts: Heath. Chesler, M.A., og Chesney, B.K. (1995). Cancer and self­help. Bridging the troubled waters of childhood cancer. Madison: The University of Wisconsin Press. Dyregrov, K. (2004). Bereaved parents’ experience of research participation. Social Science & Medicine, 58 (2), 391­400. Farmer, J.E., Marien, W.E., Clark, M.J., Sherman, A., og Selva, T.J. (2004). Primary care supports for children with chronic health conditions: Identifying and predicting unmet family needs. Journal of Pediatric Psychology, 29 (5), 355­367. Fernsler, J.I., og Manchester, L.J. (1997). Evaluation of a computer­based cancer support network. Cancer Practice, 5 (1), 46­51. Foreman, T., Willis, L., og Goodenough, B. (2006). Hospital­based sup­ port groups for parents of seriously unwell children: An example from pediatric oncology in Australia. Social Work with Groups, 28 (2), 3­21. doi:10.1300/J009v28n02_02. Galinsky, M.J., Schopler, J.H., og Abell, M.D. (1997). Connecting group members through telephone and computer groups. Health & Social Work, 22 (3), 181­188. Grande, G.E., Myers, L.B., og Sutton, S.R. (2006). How do patients who participate in cancer support groups differ from those who do not? Psycho­Oncology, 15 (4), 321­334. doi:10.1002/pon.956. Guðfinna Harðardóttir (2007). Ísland í evrópsku upplýsingasamfélagi 2006. Reykjavík: Hagstofa Íslands. Han, H.R., og Belcher, A.E. (2001). Computer­mediated support group use among parents of children with cancer: An exploratory study. Computers in Nursing, 19 (1), 27­33. Hill, W., Schillo, L., og Weinert, C. (2004). Effect of a computer­based inter­ vention on social support for chronically ill rural women. Rehabilitation Nursing, 29 (5), 169­173. Hill, W.G., og Weinert, C. (2004). An evaluation of an online intervention to provide social support and health education. Computers, Informatics, Nursing, 22 (5), 282­288. Im, E.O., Chee, W., Liu, Y., Lim, H.J., Guevara, E., Tsai, H.M., og sam­ starfsmenn. (2007). Characteristics of cancer patients in internet cancer support groups. Computers, Informatics, Nursing, 25 (6), 334­343. doi:10.1097/01.NCN.0000299655.21401.9d. Kazak, A.E., Alderfer, M., Rourke, M.T., Simms, S., Streisand, R., og Grossman, J.R. (2004). Posttraumatic stress disorder (PTSD) and post­ traumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. Journal of Pediatric Psychology, 29 (3), 211­219. Klemm, P., Bunnell, D., Cullen, M., Soneji, R., Gibbons, P., og Holecek, A. (2003). Online cancer support groups: A review of the research literature. Computers, Informatics, Nursing, 21 (3), 136­142. Kreicbergs, U. (2004). To lose a child to cancer. A nationwide study of parental experience. Stokkhólmi: Repro Print AB Stockholm. Lieberman, M.A., Golant, M., Giese­Davis, J., Winzlenberg, A., Benjamin, H., Humphreys, K., og samstarfsmenn (2003). Electronic support groups for breast carcinoma: A clinical trial of effectiveness. Cancer, 97 (4), 920­ 925. doi:10.1002/cncr.11145. Limburg, H., Shaw, A.K., og McBride, M.L. (2008). Impact of childhood can­ cer on parental employment and sources of income: A Canadian pilot study. Pediatric Blood & Cancer, 51 (1), 93­98. doi:10.1002/pbc.21448. Ljungman, G., McGrath, P.J., Cooper, E., Widger, K., Ceccolini, J., Fernandez, C.V., og samstarfsmenn (2003). Psychosocial needs of fami­ lies with a child with cancer. Journal of Pediatric Hematology/Oncology, 25 (3), 223­231. Meier, A., Lyons, E.J., Frydman, G., Forlenza, M., og Rimer, B.K. (2007). How cancer survivors provide support on cancer­related internet mailing lists. Journal of Medical Internet Research, 9 (2). , e12. Milberg, A., Rydstrand, K., Helander, L., og Friedrichsen, M. (2005). Participants’ experiences of a support group intervention for family mem­ bers during ongoing palliative home care. Journal of Palliative Care, 21 (4), 277­284. Norberg, A.L., og Boman, K.K. (2007). Parents’ perceptions of support when a child has cancer: A longitudinal perspective. Cancer Nursing, 30 (4), 294­301. doi:10.1097/01.NCC.0000281723.34125.b3. Norberg, A.L., og Boman, K.K. (2008). Parent distress in childhood cancer: A comparative evaluation of posttraumatic stress symp­ toms, depression and anxiety. Acta Oncologica, 47 (2), 267­274. doi:10.1080/02841860701558773. Poder, U., Ljungman, G., og von Essen, L. (2008). Posttraumatic stress disorder among parents of children on cancer treatment: A longitudinal study. Psycho­Oncology, 17 (5), 430­437. doi:10.1002/pon.1263. Rabineau, K.M., Mabe, P.A., og Vega, R.A. (2008). Parenting stress in pedi­ atric oncology populations. Journal of Pediatric hematology/Oncology, 30 (5), 358­365. doi:10.1097/MPH.0b013e318168e76b. Rankin, N., Williams, P., Davis, C., og Girgis, A. (2004). The use and accept­ ability of a one­on­one peer support program for Australian women with early breast cancer. Patient Education and Counseling, 53 (2), 141­146. doi:10.1016/S0738­3991(03)00142­3. Riessman, F. (1965). The “helper” therapy principle. Social Work, 10 (2), 27­32. Riessman, F., og Banks, E.C. (2001). A marriage of opposites: Self­help and the health care system. The American Psychologist, 56 (2), 173­174. Sarkadi, A., og Bremberg, S. (2005). Socially unbiased parenting support on the internet: A cross­sectional study of users of a large Swedish parenting website. Child: Care, Health and Development, 31 (1), 43­52. doi:10.1111/j.1365­2214.2005.00475.x. Schubert, M.A., og Borkman, T. (1994). Identifying the experiential knowledge developed within a self­help group. Í T. J. Powell (ritstj.), Understanding the self­help organization; frameworks and findings (bls. 227­246). Thousand Oaks: Sage Publications, Inc. Scott, D.A., Valery, P.C., Boyle, F.M., og Bain, C.J. (2002). Does research into sensitive areas do harm? Experiences of research participation after a child’s diagnosis with Ewing’s sarcoma. The Medical Journal of Australia, 177 (9), 507­510. Seale, C., Ziebland, S., og Charteris­Black, J. (2006). Gender, cancer expe­ rience and internet use: A comparative keyword analysis of interviews and online cancer support groups. Social Science & Medicine, 62 (10), 2577­2590. doi:10.1016/j.socscimed.2005.11.016. Shaw, B.R., Hawkins, R., Arora, N., McTavish, F., Pingree, S., og Gustafson, D.H. (2006). An exploratory study of predictors of partici­ pation in a computer support group for women with breast cancer. Computers, Informatics, Nursing, 24 (1), 18­27. Ussher, J.M., Kirsten, L., Butow, P., og Sandoval, M. (2008). A qualitative analysis of reasons for leaving, or not attending, a cancer support group. Social Work in Health Care, 47 (1), 14­29. van Uden­Kraan, C.F., Drossaert, C.H., Taal, E., Shaw, B.R., Seydel, E.R., og van de Laar, M.A. (2008a). Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qualitative Health Research, 18 (3), 405­417. doi:10.1177/1049732307313429. van Uden­Kraan, C.F., Drossaert, C.H.C., Taal, E., Lebrun, C.E.I., Drossaers­Bakker, K.W., Smit, W.M., og samstarfsmenn (2008b). Coping with somatic illnesses in online support groups: Do the feared disadvantages actually occur? Computers in Human Behavior, 24 (2), 309­324. Vugia, H.D. (1991). Support groups in oncology: Building hope through the human bond. Journal of Psychosocial Oncology, 9 (3), 89­106. Weinberg, N., Schmale, J., Uken, J., og Wessel, K. (1996). Online help: Cancer patients participate in a computer­mediated support group. Health & Social Work, 21 (1), 24­29. Wong, M.Y., og Chan, S.W. (2006). The qualitative experience of Chinese parents with children diagnosed of cancer. Journal of Clinical Nursing, 15 (6), 710­717. Yalom, I.D. (1985). The theory and practice of group psychotherapy (3. útg.). New York: Basic Books.
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