Ljósmæðrablaðið - 15.04.2002, Síða 17
spurningin: “Hverjum á að bjóða skimun fyrir
litningagöllum fósturs?” Ef litið er til alþjóðlegra
samþykkta ífá Alþjóða Heilbrigðismálastofhuninni
(25) og Evrópuráðinu varðandi skimun á meðgöngu
kemur skýrt fram sú skoðun að stjórnvöld skuli
tryggja jafnt aðgengi allra þeirra sem óska
þjónustunnar (26,27). Lögð er áhersla á að
þjónustan skuli vera valkostur en ekki skylda og
að góð fræðsla og ráðgjöf sé nauðsynleg fyrir og
eftir prófun. Að mínu mati getur enginn
heilbrigðisstarfsmaður eða stofnun tekið sér það
vald að segja fólki fyrir verkum, en nauðsynlegt
er að heilbrigðisstarfsmenn ffæði verðandi foreldra
svo þau geti sjálf tekið upplýsta ákvörðun varðandi
fósturskimun á grundvelli persónulegra skoðana
og aðstæðna.
Heimildaskrá
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Repeatability of measurement of fetal nuchal translucency thickness.
Ultrasound Obstet Gynecol 1995:5:334.
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19. Souka AR Snijders RJM, Novakov A, Soares W Nicolaides KH.
Defects and syndromes in chromosomally normal fetuses with
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Ultrasound Obstet Gynecol 1997:11:391.
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JF, DumezY Rrst trimester diagnosis of nuchal anomalies. significanœ
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KH. Fetalnuchaltranslucenty thicknessat 10-14weeksofgestation
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25. Proposed intematíonal Guidelines on Ethical issues in Medical
genetics and Genetic Services, Report of a WHO Meeting on Ethical
Issues in Medical Genetics , Genevea, 15-16 December 1997.
http://www.who.int/ncd/hgn/hgnethic.htm
26. Tilmæli Ráðherranefhdarinnar R (90) 13 til aðildarríkja varðandi
forburðarskimun, forburðarerfðagreiningu og erfðaráðgjöf þeim
tengda. http://cm.coe.int/ta/rec/1990/90rl3.htm.
27. Ályktun Ráðherranefhdarinnar R (92) 3 til aðildarrikjanna um
erfðaprófanir og erfðaskimun í heilbrigðisskyni.
http://cm.coe.int/ta/rec/1992/92r3.htm.