Tímarit hjúkrunarfræðinga - 01.02.1997, Blaðsíða 15

sjúkdómurinn sem slíkur er ekki sjáanlegur á líkama þeirra.
Slíkir einstaklingar njóta því lítils skilnings annarra, sérstak-
lega þegar við bætist að sjúkdómur þeirra er oft talinn sjálfs-
skaparvíti. Ljóst er að til þess að breyting verði hér á þarf að
eiga sér stað grundvallaráherslubreyting, ekki einungis í
íslenska heilbrigðisskerfinu heldur einnig í samfélaginu öllu.
Þakkarorð
Margir hafa veitt mér ómetanlegan stuðning við vinnslu
þessarar rannsóknar. Má þar einkum nefna fjölskyldu mína,
vini og hjúkrunarfræðinga á Vífilsstaðaspítala. Þó eiga þátt-
takendur þessarar rannsóknar sérstakar þakkir skildar fyrir að
eyða dýrmætri orku sinni og tíma í að ræða við mig, að opna
heimili sín fyrir mér og á allan hátt að veita mér innsýn inn í líf
sitt eins og þeim var framast mögulegt.
Abstract
The study describes the lived experience of people with Chronic
Obstructive Pulmonary Disease (COPD) based on Newman’s theory of
Health as Expanding Consciousness. Applying hermeneutic
phenomenology, the researcher engaged in five in-depth interviews
with ten participants. Results demonstrate the participants’ life
pattem of isolation and being closed in. Themes characterizing the
participants’ life pattem were: a) Resignation to the situation as it is -
A way to survive, b) Unsuccessful solutions to traumatic events, c)
Difficulties in expressing oneself and in relating to others, d) Conflict
between intemal needs and external expectations, e) Few words for
breathing difficulties, f) Activity restrictions, g) Interplay between
emotional condition and breathing difficulties, and h) Work of high
priority.
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TÍMARIT HJÚKRUNARFRÆÐINGA 1. thl. 73. árg. 1997