Uppeldi og menntun - 01.07.2015, Side 107

Uppeldi og menntun - 01.07.2015, Side 107
UPPELDI OG MENNTUN/ICELANDIC JOURNAL OF EDUCATION 24(2) 2015 107 KRISTÍN BJÖRNSDÓTTIR & STEINDÓR JÓNSSON One of the problems of working in sheltered workshops is not having access to labor unions on an equal basis with others and not receiving the privileges which are common to union members, such as access to vacation homes and continuous edu- cation opportunities. Segregated workshops are not based on a widely shared social experience and participation and therefore not inclusive. This is, in our opinion, one of the factors that contribute to the social exclusion of disabled people, particularly people with intellectual disabilities. The CRPD also recognizes the right of disabled people to self-employment and entrepreneurship on an equal basis with others (Unit- ed Nations, 2006). In the summer of 2013 a small group of people with intellectual disabilities opened a café in the center of Reykjavík. The café was a developmental project, based on an inclusive and participatory ideology. The café received grants and support from the University of Iceland and the city of Reykjavík and was an instant success (Gæs kaffihús, 2014). This concept is interesting in reference to Sen’s (1992) capability approach and brings us to the question: What do people with intel- lectual disabilities need to be able to run their own business? The café owners, who were people with intellectual disabilities, demonstrated that with appropriate support and assistance they were capable of running their own business, making a profit, and the café was able to thrive in a competitive market. However, development projects are temporary, and at the end of summer 2013, the city of Reykjavík discontinued its financial support which drew significant attention from local newspapers. In an interview, Anna Kristinsdóttir, the human rights officer of Reykjavík, said: ‘As a municipality it is not appropriate that we participate in a competitive market this way. We have told them that we want to help them developing their project and making it sustainable’ (Braga, 2013). The café group tried to keep the project alive but after a very successful summer it was permanently closed down in the fall of 2013.2 The discontinued support of the municipality is not a form of social exclusion in itself since it is not in general its role to provide this type of support. However, discon- tinuation of support can lead to other deprivations through causal consequences (Sen, 2000). The café owners have intellectual disabilities, and if they are supposed to func- tion in the café business they need some kind of support. For example, their business faced increased operating costs because of their need for assistance with matters such as bookkeeping. Their need for assistance might however well be temporary; that is, they would probably need less support as time goes by and their business could in the future cover the cost of such extra support. If neither the municipality nor the state – whose responsibility it is to support dis- abled people to participate in the job-market – is able or willing to support this kind of entrepreneurship, the individuals concerned need to have access to financial services, including credit. Recent research in Iceland suggests that people with intellectual disabilities have no access to financial services and often lack full control over their financial affairs (Björnsdóttir, Stefánsdóttir, & Stefánsdóttir, 2015). It is, therefore, not surprising that people who are not trusted by family members and support staff to manage their own money are not eligible for credit or start up loans. Not having access to the credit market is also not impoverishing in itself, but like the lack of backing from the municipality, can lead to other deprivations such as the inability to
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