Tímarit hjúkrunarfræðinga - 01.02.1999, Blaðsíða 22

Lokaorð
Fjölskyldur ungra barna með langvarandi astma standa
frammi fyrir mörgum erfiðleikum. Vegna þess hvernig
astmi hegðar sér hjá ungum börnum þurfa fjölskyldur
ungra barna með astma oft og tíðum að vera í nánu sam-
bandi við heilbrigðiskerfið í langan tíma. í þjóðfélagi, þar
sem verið er að draga saman heilbrigðisþjónustuna og
ábyrgðin á umönnun barns með langvarandi heilbrigðis-
vandamál hefur færst í æ ríkari mæli yfir á fjölskyldurnar, er
mikilvægt að beina athyglinni að umönnunarálagi fjöl-
skyldna og því hvernig mæður og feður taka að sér
mismunandi umönnunarhlutverk til að halda fjölskyldunni
gangandi. Mikilvægir þættir í hjúkrunarþjónustu við fjöl-
skyldur ungra barna með langvarandi astma eru að auka
öryggi mæðra og feðra í umönnunarhlutverkum sínum
sem og að upplýsa fjölskyldur um möguleg úrræði í sam-
félaginu. Slíkar áherslur í heilbrigðisþjónustunni geta aukið
bæði vellíðan barnsins með astmann sem og vellíðan
foreldranna og fjölskyldunnar í heild.
Þakkarorð
Þegar litið er til baka og hugurinn látinn reika til þeirrar vinnu
sem liggur að baki rannsókn þessari, koma margar góðar
minningar upp í hugann. í fyrsta lagi vil ég einlæglega þakka
öllum foreldrunum sem tóku þátt í rannsókninni fyrir að deila
reynslu sinni með mér. Án hjálpar þessara fjölskyldna hefði
rannsóknin aldrei orðið möguleg. í öðru lagi fá dr. Marilyn
McCubbin, dr. Patricia Becker, dr. Janet Kane og dr. David
Riley, sem öll eru framúrskarandi fræðimenn og góðir vinir,
bestu þakkir fyrir alla leiðbeiningarnar, stuðninginn og
hvatninguna á meðan á rannsóknarverkefninu stóð.
Abstract
The purpose of this study was to identify caregiving demands and task
difficulties, in families who had an infant or a young child (0-6 years old)
with asthma. Seventysix families (75 mothers and 62 fathers) who were
living in the Midwest and the East Coast of the United States
participated in the research. The Resiliency Model of Family Stress,
Adjustment and Adaption (McCubbin & McCubbin, 1993; 1996) was the
conceptual framework for the study. The most time-consuming care-
giving task for both parents was to provide emotional and developmental
support and manage discipline and behavioral problems for the child.
The most difficult caregiving task for fathers and the second most
difficult caregiving for mothers was to handle an asthma episode. These
findings give healthcare professionals such as nurses’ new understand-
ing of the demands and strains parents experience when they are caring
for their young child with asthma.
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Tímarit hjúkrunarfræðinga • 1. tbl. 75. árg. 1999