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Læknablaðið - 15.10.1989, Qupperneq 46

Læknablaðið - 15.10.1989, Qupperneq 46
308 LÆKNABLAÐIÐ the conclusions made about management. Such patterns of careful thinking and careful documentation constitute good clinical practice. How often audit occurs and by whom may be a matter of considerable difference among various countries. Adding extra layers of mandatory audit may compromise the quality of patient care without helping to avoid the occasional bad decision. 6. When patients lack a surrogate, little difficulty arises when the benefit-burden ratio clearly favors administration and continuation of life-prolonging treatment. When the benefit-burden ratio is less certain or reversed, a wide variety of mechanisms have been proposed to aid or to review the physician’s decision making. 7. The physician may appropriately withdraw or withhold life-prolonging treatment when, in the view of the informed surrogate and physician, continued treatment would lead to unacceptable burdens without sufficient compensating benefits. What counts as a benefit and a burden and the relative ratio between them depend on specific situational factors, and therefore, good decisions in this category of patients demand individual discretion. While these patients possess a vulnerability which makes them frequently subject to social discrimination and stigmatization, their interests are not protected by the elimination of decisional discretion. On the contrary, a trustworthy physician and the processes of appropriate audit are better means of protecting the interests of vulnerable patients. PART IV: SCARCITY (17) Growing needs and demands, a growing range of increasingly costly medical options, and diminishing resources compel us to recognize that it is not feasible to offer all beneficial treatments that are medically possible to all patients. Necessarily, all communities face scarcities. Some instances of scarcity can be addressed by a particular allocation of funds. Others, such as a shortage of organs for transplant, may involve absolute limitations which may not be resolved easily within the apparently acceptable range of ethical choices. Scarcity, by definition, requires choice, and any choice in the context of scarcity requires forgoing alternative choices. Societies may deny that they make such choices or disguise the ones they make, but they do so at the price of honesty, justice and efficiency. Honest responses to situations which require choice may, on the other hand, yield long-term advantages. Scarcity forces societies and institutions to establish priorities which may give rise to more efficient resource use, such as devoting more resources to those medical circumstances where the returns in terms of health outcomes are likely to be the greatest. In determining priorities, given the scarcity of health resources, the following concepts play critical roles: 1. The principle of justice requires universal access to an acceptable, decent minimum of basic health care. 2. What constitutes this acceptable, decent minimum of basic health care will depend on the particular society’s general level of affluence and other priorities and hence will vary not only from culture to culture but from time to time (18). The principal task is to assess other competing values and to make judgments about which health care needs are most pressing and which responses to those needs are reasonable and proportional. 3. When a society decides to declare a right to certain health services for all, it must incorporate into that decision a willingness to give up alternative uses of those resources necessary to deliver such care. 4. If medical decision making emphasizes cost-effective therapies, the burdens of satisfying the desired universal access will be markedly reduced. 5. Sometimes relatively unfettered market transactions can do a good job of delivering cost-effective health care products and services, but, even when market processes deliver efficiency, they do so at the cost of equitable access; thus, the market place cannot be the sole determinant of access and priorities. Guidelines With these notions in mind, the following guidelines should be considered: 1. Society must establish the limits and the priorities for lifesustaining treatment options. 2. Processes used to establish such limits must be, and be perceived to be, open and fair. 3. Cost effectiveness should be used whenever feasible to inform decisions about appropriate life-prolonging treatments in particular
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