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Læknablaðið - 15.10.1989, Síða 47

Læknablaðið - 15.10.1989, Síða 47
LÆKNABLAÐIÐ 309 circumstances. Cost Effectiveness Analysis (CEA) should incorporate the best available scientific information about the results of the therapies being considered and all appropriate medical and non-medical costs and benefits - including an assessment of foreseeable changes in the patient’s quality of life as a result of the proposed therapies. Although CEA is an invaluable and indispensible tool in making ethical decisions, it is not a simple formula and must not be naively applied. Several caveats are noteworthy. CEA, like all analytical frameworks, requires accurate data which may be extremely difficult and expensive to obtain. Care must be taken to be sure that the interpretation of the data is free from unwarranted extrapolations. Finally CEA must be tempered by sensitivity to human differences and case by case application, based on the assessment of particular benefits and burdens for individual patients. 4. CEA-based information, guidelines, and limitations should be quickly and widely distributed. 5. Society must be willing to adjust its expectations so that its selected limits become accepted practice and/or legal norms. 6. Both ethical and effective policy require that institutions conspicuously publicize any restrictive or prescriptive policy rules in advance of patient admission. 7. If institutional limits imply that physicians must deny care to some patients, they have an especially strict obligation to weigh burdens and benefits in selecting care and treatment. 8. Patients do not have a right to treatment which has no reasonable expectation of benefit. 9. If treatment is denied on the basis of a social decision, such denial must not be disguised as a medical decision. 10. When physicians believe that care is being withheld improperly, the are obliged to protest on behalf of their patients. 11. Private purchase of health care necessarily produces inequities. When the private purchase of health care significantly impinges of the fair distribution of available medical resources (as in the availability of organs for transplant) or on a society’s ability to provide an acceptable, decent minimum of basic health care, such private purchase could be restricted. DISSENTS Part I. 1. Requests for euthanasia by competent patients severely and irremediably suffering as a result of incurable disease may be understandable, but are not morally justified. Statutory legalization of the intetional killing of patients by doctors is against basic morality as well as against the public interest. Shimon Glick, M.D., Beer-Sheva, Israel Arnold Rosin, M.B., Ch.B., F.R.C.P., Jerusalem, Israel Avraham Steinberg, M.D., Jerusalem, Israel. Part II. Persistent vegetative state 1. While it may be true that the patient with PVS has no »self-regarding interests,» it is not so obvious that no other moral interests are at stake; for example, the inherent value of life. Since patients with PVS clearly do not suffer from their state, their quality of life cannot be characterized as »harmful« to themselves. We, therefore, cannot accept a categorial statement which rules out life-sustaining treatments. Shimon Glick, M.D., Beer-Sheva, Israel Thomas Murray, Ph.D., Cleveland, Ohio Arnold Rosin, M.B., Ch.B., F.R.C.P., Jerusalem, Israel Avraham Steinberg, M.D., Jerusalem, Israel Susan Wolf, J.D., Briarcliff Manor, New York NOTES 1. Despite the wide variety of medical cultures represented, the delegates want to acknowledge that the perspective included in the conference represented only a small fraction of the world population and did not include perspectives from Eastern Europe, the Orient, the Third World, and several other »western« nations, both European and American. It is our hope that the discussion provoked by the publication of these guidelines will lead to contributions from many of those perspectives. 2. The new delegates are indicated on the list of delegates, Table I. 3. The membership of the working groups is also indicated in Table I. 4. These four principles, though individually ancient, were rearticulated in the bioethics literature in the late seventies by the philosopher

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