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R A N N S Ó K N
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ENGLISH SUMMARY
Introduction: A significant proportion of patients with ulcerative colitis
(UC) undergo colectomy. The aim was to assess the quality of life (QOL)
of these patients.
Material and methods: All patients with UC who underwent colec-
tomy at The National University Hospital of Iceland or Akureyri Hospital
1995-2009 were included. 106 patients received three questionnaires.
SF-36v2 and EORTC are standardised QOL-questionnaires. The third
contained functional questions designed by the researchers.
Results: Eighty-three patients replied (78%), 45 men (54%) and 38
women (46%). Average age at operation was 45 years (10-91 years).
Forty-four (53%) had ileostomy, 28 (34%) ileal pouch-anal anastomosis
(IPAA) and 11 (13%) ileorectal anastomosis. Among patients who had the
rectum removed 37% described changes in urinary habits and 46% in
sexual life after surgery. Among patients with IPAA 75% admitted to fae-
cal incontinence but this was mild according to Wexner‘s scale in 83%
of the cases. According to SF-36v2 there was no significant difference
in the QOL of colectomy patients compared to the general population.
Patients generally felt good about their health, body image and weight
and had mild symptoms according to EORTC QLQ-CR29.
Conclusions: Urinary habits and sexual life were commonly affected
after rectal removal. Faecal incontinence among IPAA-patients was
much more common than expected. There was not much difference
in quality of life compared to the general population. The results of the
study are important for patient education and may aid them in their deci-
sion making since removing the colon or having a stoma does not seem
to affect quality of life.
Quality of Life after colectomy due to ulcerative colitis
Katrín Guðlaugsdóttir1, Elsa B. Valsdóttir1,2, Tryggvi B. Stefánsson1
1Department of Surgery, The National University Hospital of Iceland, 2Faculty of Medicine, the University of Iceland.
Key words: Quality of life, ulcerative colitis, ileostomy, colectomy.
Correspondence: Elsa B. Valsdóttir, elsava@landspitali.is