Tímarit hjúkrunarfræðinga - 01.04.2013, Page 60

Tímarit hjúkrunarfræðinga - 01.04.2013, Page 60
Tímarit hjúkrunarfræðinga – 2. tbl. 89. árg. 201356 LOKAORÐ Niðurstöður rannsóknarinnar benda til að auka þurfi stuðning og fræðslu til nýraþega fyrir aðgerð og þá sérstaklega til þeirra sem fá nýra frá látnum gjafa. Lítið er til af fræðsluefni á íslensku um nýraígræðslur og úr því þarf að bæta. Þá er einnig áhugavert að kanna lífsgæði og stuðning við sjúklinga með lokastigsnýrnabilun, sem eru í skilunarmeðferð, með sama matstæki og hér var notað (SF­36v²). Það gæfi möguleika á samanburði þessara hópa og hægt væri að meta hvort lífsgæði og heilsa íslenskra nýrnasjúklinga batna við að fá ígrætt nýra. Vonast er til að niðurstöður rannsóknarinnar verði til að auka stuðning og fræðslu til sjúklinga með lokastigsnýrnabilun og bæta þannig lífsgæði þeirra bæði fyrir og eftir nýraígræðslu. Þakkir Félagi íslenskra hjúkrunarfræðinga og vísindasjóði Landspítalans er þakkað fyrir veitta styrki. Síðast en ekki síst fá nýraþegarnir, sem þátt tóku í rannsókninni, sérstakar þakkir. Án þeirra þátttöku hefði þessi rannsókn ekki verið gerð. Heimildir: Aasebo, W., Homb­Vesteraas, N.A., Hartmann, A., og Stavem, K. (2009). Life situation and quality of life in young adult kidney transplant recipients. Nephrology, dialysis, transplantation, 24 (1), 304­308. Anna Dóra Sigurðardóttir (2009). Sér gefur gjöf sem gefur: Rannsókn um nýragjöf lifandi gjafa. Meistararitgerð. Háskóli Íslands. Félagsráðgjafadeild. Bakdash, T., og Scheper­Hughes, N. (2006). Is it ethical for patients with renal disease to purchase kidneys from the world’s poor? Public Library of Science, 3 (10), 349. Brown, J.B., Karley, M.L., Boudville, N., Bullas, R., Garg, A.X., og Muirhead, N. (2008). The experience of living kidney donors. Health & Social Work, 33 (2), 93­100. Buldukoglu, K., Kulakac, O., Kececioglu, N., Alkan, S., Yilmaz, M., og Yucetin, L. (2005). Recipients’ perceptions of their transplanted kidneys. Transplantation, 80 (4), 471­476. Chen, W.C., Chen, C.H., Lee, P.C., og Wang, W.L. (2007). Quality of life, symptomdistress, and social support among renal transplant recipients in southern Taiwan: A correlational study. The Journal of Nursing Research, 15 (4), 319­329. Cherchiglia, M.L., Machado, E.L., Szuster, D.A., Andrade, E.I., Assis Acúrcio, F., Caiaffa, W.T., o.fl. (2010). Epidemiological profile of patients on renal replacement therapy in Brazil, 2000­2004. Revista de Saude Publica, 44 (4), 639­649. Clemens, K.K., Thiessen­Philbrook, H., Parikh, C.R., Yang, R.C., Karley, M.L., Boudville, N., o.fl. (2006). Psychosocial health of living kidney donors: A systematic review. American Journal of Transplantation, 6 (12), 2965­2977. Davis, C.L., og Delmonico, F.L. (2005). Living­donor kidney transplantation: A review of the current practices for the live donor. Journal of the American Society of Nephrology, 16 (7), 2098­2110. Gill, P., og Lowes, L. (2008). Gift exchange and organ donation: Donor and recipient experiences of live related kidney transplantation. International Journal of Nursing Studies, 45 (11), 1607­1617. Griva, K., Ziegelmann, J.P., Thompson, D., Jayasena, D., Davenport, A., Harrison, M., o.fl. (2002). Quality of life and emotional responses in cadaver and living related renal transplant recipients. Nephrology, Dialysis,Transplantation, 17 (12), 2204­2211. Gruessner, R.W.G., og Benedetti, E. (2007). Living donor organ transplantation. New York: McGraw­Hill Education. Jenkinson, C. (1999). Comparison of UK and US methods for weighting and scoring the SF­36 summary measures. Journal of Public Health Medicine, 21 (4), 372­376. Keller, S.D., Ware, J.E., jr., Bentler, P.M., Aaronson, N.K., Alonso, J., Apolone, G., o.fl. (1998). Use of structural equation modeling to test the construct validity of the SF­36 Health Survey in ten countries: Results from the IQOLA Project. International quality of life assessment. Journal of Clinical Epidemiology, 51 (11), 1179­1188. Knoll, G. (2008). 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Ásmundsson og Runólfur Pálsson (1999). Meðferð við lokastigsnýrnabilun á Íslandi 1968­1997. Læknablaðið, 85 (1), 9­24. Pradel, F.G., Suwannaprom, P., Mullins, C.D., Sadler, J., og Bartlett, S.T. (2008). Short­term impact of an educational program promoting live donor kidney transplantation in dialysis centers. Progress in Transplantation, 18 (4), 263­272. Reese, P.P., Shea, J.A., Berns, J.S., Simon, M.K., Joffe, M.M., Bloom, R.D., o.fl. (2008). Recruitment of live donors by candidates for kidney transplantation. Clinical Journal of the American Society of Nephrology, 3 (4), 1152­1159. Reese, P.P., Shea, J.A., Bloom, R.D., Berns, J.S., Grossman, R., Joffe, M., o.fl. (2009). Predictors of having a potential live donor: A prospective cohort study of kidney transplant candidates. American Journal of Transplantation, 9 (12), 2792­2799. Reimer, J., Rensing, A., Haasen, C., Philipp, T., Pietruck, F., og Franke, G.H. (2006). 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