Tímarit hjúkrunarfræðinga - 2020, Síða 100
Heimildir
Andersson, S., Erlingsson, C., Magnusson, L. og Hanson, E. (2017). e ex-
periences of working carers of older people regarding access to a web-
based family care support network offered by a municipality. Scan-
dinavian Journal of Caring Sciences, 31(3), 487–496. doi:10.1111/scs.12361
Bangerter, L. R., Griffin, J. M. og Dunlay, S. M. (2018). Qualitative study of
challenges of caring for a person with heart failure. Geriatric Nursing,
39(4), 443–449. doi:10.1016/j.gerinurse.2017.12.017
Brinkmann, S. og Kvale, S. (2008). Ethics in qualitative psychological re-
search. Í C. Willig, og W. S. Rogers (ritstjórar), e Sage handbook of
qualitative research in psychology. (2. útgáfa) (bls. 259–273). London:
Sage.
Buyck, J. F., Bonnaud, S., Boumendil, A., Andrieu, S., Bonenfant, S., Gold-
berg, M., … og Ankri, J. (2011). Informal caregiving and self-reported
mental and physical health: Results from the Gazel Cohort Study. Ameri -
can Journal of Public Health, 101(10), 1971–1979. doi:10.2105/AJPH.
2010.300044
Chappell, N. L., Dujela, C. og Smith, A. (2015). Caregiver well-being: Inter-
sections of relationship and gender. Research on Aging, 37(6), 623–645.
doi:10.1177/0164027514549258
Chappell, N. L. og Hollander, M. (2013). Aging in Canada. Toronto, Kanada:
Oxford University Press.
Elmståhl, S., Dahlrup, B., Ekström, H. og Nordell, E. (2018). e association
between medical diagnosis and caregiver burden: A cross-sectional study
of recipients of informal support and caregivers from the general popu-
lation study ‘Good aging in Skåne’, Sweden. Aging Clinical and Experi-
mental Research, 30(9), 1023–1032. doi:10.1007/s40520-017-0870-0
Eurostat. (2019). 1 in 3 people in the EU reported care responsibilities in 2018.
Sótt á ht.pdf/182bca6f-3e23-c913-0dcf-b25f846fa1e2
Giorgi, A. (2009). e descriptive phenomenological method in psychology.
Pittsburgh, Pennsylvaníu: Duquesne University Press
Grove, S. K., Burns, N. og Gray, J. (ritstjórar). (2013). e practice of nursing
research: Appraisal, synthesis, and generation of evidence (7. útgáfa). St.
Louis: Elsevier Saunders.
Hagstofa Íslands. (2017). Mannöldaspá 2017–2066. Hagtíðindi 102(21), 9.
Sótt á https://hagstofa.is/utgafur/nanar-um-utgafu?id=58823
Heilbrigðisráðuneytið. (2019). Heilbrigðisstefna. Stefna fyrir íslenska heil-
brigðisþjónustu til ársins 2030. Sótt á https://www.stjornarradid.is/lisa-
lib/getfile.aspx?itemid=879dd726-9e80-11e9-9443-005056bc4d74
Hooyman, N. R., og Kiyak, A. H. (2011). Social gerontology. A multidisci -
plinary perspective (9. útgáfa). Boston: Pearson Education, Inc., Publishing.
Ingibjörg Hjaltadóttir, Kjartan Ólafsson, Árún Sigurðardóttir og Ragnheiður
Harpa Arnardóttir. (2019). Heilsa og lifun íbúa fyrir og eir setningu
strangari skilyrða fyrir flutningi á hjúkrunarheimili 2007. Læknablaðið
10(105), 432–441. doi:10.17992/lbl.2019.10.251
Johannessen, A., Helvik, A., Engedal, K. og orsen, K. (2017). Experiences
and needs of spouses of persons with young‐onset frontotemporal lobe
dementia during the progression of the disease. Scandinavian Journal of
Caring Sciences, 31(4), 779–788. doi:10.1111/scs.12397
Landlæknir. (2018). Bið eir hjúkrunarrými. Sótt á https://www.landlaeknir.is/
servlet/file/store93/item34966/Bid_eir_hjukrunarrymi_vefur_160518.
pdf
Liu, S., Li, C., Shi, Z., Wang, X., Zhou, Y., Liu, S., … og Ji, Y. (2017). Caregiver
burden and prevalence of depression, anxiety and sleep disturbances in
Alzheimer’s disease caregivers in China. Journal of Clinical Nursing,
26(9–10), 1291–1300. doi:10.1111/jocn.13601
Lopez Hartmann, M., Anthierens, S., Van Assche, E., Welvaert, J., Verhoeven,
V., Wens, J. og Remmen, R. (2016). Understanding the experience of
adult daughters caring for an ageing parent: A qualitative study. Journal
of Clinical Nursing, 25(11–12), 1693–1702. doi:10.1111/jocn.13195
Luichies, I., Goossensen, A. og van der Meide, H. (2019). Caregiving for age-
ing parents: A literature review on the experience of adult children. Nursing
Ethics, 1–20. doi:10.1177/0969733019881713
Malterud, K. (2001). Qualitative research: Standards, challenges, and guide-
lines. e Lancet, 358(9280), 483–488. doi:10.1016/S0140-6736(01)
05627-6
Malterud, K. (2012). Systematic text condensation: A strategy for qualitative
analysis. Scandinavian Journal of Public Health, 40(8), 795–805. doi:10.
1177/1403494812465030
Malterud, K., Siersma, V. D. og Guassora, A. D. (2016). Sample size in qual-
itative interview studies. Qualitative Health Research, 26(13), 1753–1760.
doi:10.1177/1049732315617444
Metzelthin, S. F., Verbakel, E., Veenstra, M. Y., Van Exel, J., Ambergen, A. W.
og Kempen, G. I. (2017). Positive and negative outcomes of informal care -
giving at home and in institutionalised long-term care: A cross-sectional
study. BMC Geriatrics, 17(1), 232. doi 10.1186/s12877-017-0620-3
Reinhard, S. C., Feinberg, L. F., Choula. R. og Houser, A. (2015). Valuing the
invaluable: 2015 Update. Undeniable progress, but big gaps remain: Wash -
ingtonborg: AARP Public Policy Institute. Sótt á https://www.aarp.org/
content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-
new.pdf
Ringer, T. J., Wong-Pack, M., Miller, P., Patterson, C., Marr, S., Misiaszek, B.,
… og Papaioannou, A. (2020). Understanding the educational and sup-
port needs of informal care-givers of people with dementia attending an
outpatient geriatric assessment clinic. Ageing and Society, 40(1), 205–
228. doi:https://doi.org/10.1017/S0144686X18000971
Roth, D. L., Brown, S. L., Rhodes, J. D., og Haley, W. E. (2018). Reduced mor-
tality rates among caregivers: Does family caregiving provide a stress-
buffering effect? Psychology and Aging, 33(4), 619. doi:10.1037/pag0000224
Schulz, R. og Sherwood, P. (2008). Physical and mental health effects of fam-
ily caregiving. e American Journal of Nursing, 108(9 Suppl.), 23–27.
doi:10.1097/01.NAJ.0000336406.45248.4c
Sigurdardottir, S. H., Sundstrom, G., Malmberg, B. og Bravell, M. E. (2012).
Needs and care of older people living at home in Iceland. Scandinavian
Journal of Public Health, 40(1), 1–9. doi:10.1177/1403494811421976
Silva, A. L., Teixeira, H. J., Teixeira, M. J. C. og Freitas, S. (2013). e needs
of informal caregivers of elderly people living at home: An integrative
review. Scandinavian Journal of Caring Sciences, 27(4), 792–803. doi:10.
1111/scs.12019
Starks, H. og Trinidad, S. B. (2007). Choose your method: A comparison of
phenomenology, discourse analysis, and grounded theory. Qualitative
Health Research, 17(10), 1372–1380. doi:10.1177/1049732307307031
Stucki, B. R. og Mulvey J. (2000). Can aging baby boomers avoid the nursing
home? Long term care insurance for aging in place. Washingtonborg:
American Council of Life Insurers.
Tara Björt Guðbjartsdóttir og Elísabet Hjörleifsdóttir. (2019). Þetta var erfið -
asta hlutverk sem ég hef fengið: Áhrif alzheimer-sjúkdóms á að stand -
endur og reynsla þeirra af þjónustu. Tímarit hjúkrunarfræðinga, 95(3),
71–79.
Vaingankar, J. A., Subramaniam, M., Picco, L., Eng, G. K., Shafie, S., Samba-
sivam, R., … og Chong, S. A. (2013). Perceived unmet needs of informal
caregivers of people with dementia in Singapore. International Psy-
chogeriatrics, 25(10), 1605. doi:10.1017/S1041610213001051
World Medical Association. (2013). World Medical Association Declaration
of Helsinki: Ethical principles for medical research involving human sub-
jects. JAMA: Journal of the American Medical Association, 310(20), 2191–
2194. doi:10.1001/jama.2013.281053
Zulkifley, N. H., Manaf, R. A., Ying, L. P. og Ismail, S. (2020). Educational
intervention for informal caregiver of person with dementia: A system-
atic review. Malaysian Journal of Medicine and Health Sciences, 16(1),
325–333. doi:10.1017/S1041610214001045
fjóla sigríður bjarnadóttir, kristín þórarinsdóttir og margrét hrönn svavarsdóttir
100 tímarit hjúkrunarfræðinga • 3. tbl. 96. árg. 2020