Tímarit hjúkrunarfræðinga - 2019, Blaðsíða 61

Heimildir
atkins, S., Lewin, S., Smith, h., Engel, M., fretheim, a., og Volmink, j. (2008). Conducting a meta-
ethnography of qualitative literature: Lessons learnt. BMC Medical Research Methodology, 8(21),
1–10. doi: 10.1186/1471-2288-8-21
DeMaagd, g., og Philip, a. (2015). Parkinson’s disease and its management. Part 1: Disease entity, risk
factors, pathophysiology, clinical presentation, and diagnosis. Pharmacy and Therapeutics, 40(8),
504–510, 532. Sótt á https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4517533/
giles, S., og Miyasaki, j. (2009). Palliative stage Parkinson’s disease: Patient and family experiences of
health-care services. Palliative Medicine, 23(2), 120–125. doi: 10.1177/0269216308100773
haahr, a., kirkevold, M., hall, E. O. C., og Østergaard, k. (2010). Living with advanced Parkinson’s dis-
ease: a constant struggle with unpredictability. Journal of Advanced nursing, 67(2), 408–417. doi:
10.1111/j.1365-2648.2010.05459.x
habermann, B., og Shin, j. Y. (2017). Preferences and concerns for care needs in advanced Parkinson’s
disease: a qualitative study of couples. Journal of Clinical Nursing, 26(11–12), 1650–1656. doi:
10.1111/jocn.13565
jellinger, k. a. (2019). is Braak staging valid for all types of Parkinson’s disease? Journal of Neural Trans-
mission, 126, 423–431. doi: 10.1007/s00702-018-1898-9
jónína h. hafliðadóttir, helga jónsdóttir og Marianne E. klinke. (2015). góð ráð við hjúkrun sjúklinga
með Parkinsonveiki. Tímarit hjúkrunarfræðinga, 1(91), 14–21.
kang, M. Y., og Ellis-hill, C. (2015). how do people live life successfully with Parkinson’s disease? Journal
of Clinical Nursing, 24(15–16), 2314–2322. doi: 10.1111/jocn.12819
Lageman, S. k., Mickens, M. n., og Cash, T. V. (2015). Caregiver-identified needs and barriers to care
in Parkinson’s disease. Geriatric Nursing, 36(3), 197–201.doi: 10.1016/j.gerinurse.2015.01.002
McLaughlin, D., hasson, f., kernohan, W. g., Waldron, M., McLaughlin, M., Cochrane, B., og Cham-
bers, h. (2010). Living and coping with Parkinson’s disease: Perceptions of informal carers. Palliative
Medicine, 25(2), 177–182. doi: 10.1177/0269216310385604
Megari, k. (2013). Quality of life in chronic disease patients. Health Psychology Research, 1(e27), 141–
148. doi: 10.4081/hpr.2013.e27
Morley, D., Dummett, S., kelly, L., Dawson, j., og jenkinson, C. (2015). Evaluating the psychometric
properties of an e-based version of the 39-item Parkinson’s disease questionnaire. Health and Quality
of Life Outcomes, 13(1), 1–5. doi: 10.1186/s12955-014-0193-1
Moustafa, a. a., Chakravarthy, S., Phillips, j. r., gupta, a., keri, S., Polner, B., … jahanshahi, M. (2016).
Motor symptoms in Parkinson’s disease: a unified framework. Neuroscience and Biobehavioral Re-
views, 68, 727–740. doi: 10.1016/j.neubiorev.2016.07.010
Mshana, g., Dotchin, C. L., og Walker, r. W. (2011). ‘We call it the shaking illness’: Perceptions and ex-
periences of Parkinson’s disease in rural northern Tanzania. BMC Public Health, 11(219), 1–8. doi:
10.1186/1471-2458-11-219
Murdock C., Cousins W., og kernohan W. g. (2014). „running water won’t freeze“: how people with
advanced Parkinson’s disease experience occupation. Palliative Supportive Care, 13(5), 1363–1372.
http://doi.org/10.1017/S1478951514001357
niCE (national institute for health and care excellence). (2017). Parkinson’s disease in adults. https://
www.nice.org.uk/guidance/ng71/resources/parkinsons-disease-in-adults-pdf-1837629189061
Ólöf Sólrún Vilhjálmsdóttur og Sara jane friðriksdóttir. (2019). „Þetta er meira en bara sjúkdómur.“
Lífið með Parkinsonsveiki: reynsla sjúklinga og aðstandenda. Samþætting eigindlegra rannsókna.
Skemman. http://hdl.handle.net/1946/33185
Parkinsonsamtökin. (2019). Sótt á http://parkinson.is/
Plouvier, a. O. a., hartman, T. C. O., Listenburg, a., Bloem, B. r., Weel, C., og janssena, a. L. M. (2018).
Being in control of Parkinson’s disease: a qualitative study of community-dwelling patients’ coping
with changes in care. European Journal of General Practice,24(1), 138–145. doi:10.1080/13814788.
2018.1447561
Poewe, W., Seppi, k., Tanner, C. M., halliday, g. M., Brundin, P., Volkmann, j., … Lang, a. E. (2017).
Parkinson disease. Nature Reviews Disease Primers. Sótt á http://discovery.ucl.ac.uk/1550201/
2/Schrag-a_Parkinsons%20disease%20primer%202.pdf
Polit, D. f., og Beck, C. T. (2017). Nursing research. Generating and assessing evidence for nursing practice
(10. útgáfa). Philadelphia: Wolters kluwer health.
Pretzer-aboff, i., galik, E., og resnick, B. (2009). Parkinson’s disease: Barriers and facilitators to opti-
mizing function. Rehabilitation Nursing, 34(2), 55–83. doi: 10.1002/j.2048-7940.2009.tb00249.x
Sigurlaug Sveinbjörnsdóttir. (2016). The clinical symptoms of Parkinson’s disease. Journal of Neuroc-
hemistry, 139(1), 318–324. http://doi.org/10.1111/jnc.13691
Smith, L. j., og Shaw, r. L. (2017). Learning to live with Parkinson’s disease in the family unit: an in-
terpretative phenomenological analysis of well-being. Medicine Health Care, and Philosophy, 20(1),
13–21. doi: 10.1007/s11019-016-9716-3
Tan, S. B., Williams, a. f., og Morris, M. E. (2012). Experiences of caregivers of people with Parkinson’s
disease in Singapore: a qualitative analysis. Journal of Clinical Nursing, 21(16), 2235–2246. doi:
10.1111/j.1365-2702.2012.04146.x
þetta er meira en bara sjúkdómur
tímarit hjúkrunarfræðinga • 3. tbl. 95. árg. 2019 61